Dear Goddess of Craftastrophe,
I am sure I have already posted about this. If I have, I am totally claiming MS cognitive issues. If not, whew!
In your honour, for people with MS who haven't got hope, for those who have been treated for CCSVI (the 'liberation procedure' and I hate that incorrect label) and for those who like the Corpse Bride, Zombie pin-ups, or people who look like they are drunk when walking, but actually aren't, I would respectfully request you, oh goddess, to help me promote a video.
A video you say? Yup. I made one. It has pin-up pictures, me stomping on the cane I used when I was really sick with Primary Progressive MS, and stomping on that bad boy with big black platform PVC boots. You can see me trying to boogie board in Venice Beach. You can watch me walk in heels, and not be able to walk without assistance. You can watch half of my face frozen, or watch me advocate at Queen's Park. It is one crazy, whirlwind, action-packed video but, would you expect anything else from me? Thought not.
If you click on like, on the page Lady Luck Pin Ups for VIDEO NUMBER 4 (oh goddess, I hate yelling, I am sorry, but there have been mix-ups, like friends liking the video on you-tube instead of on this facebook fan page link, for example) I will win a contest. I can be a pin-up for a day, and forget my troubles. My pain. Feel good about myself. And, impress my friends. Pretty sweet, huh?
But, truly, this contest has given me the opportunity to share with people what treatment for CCSVI can actually do. My response was amazing, and I know not every one's is the same. I also know that some ofmy symptoms are coming back, slowly, and I am not sure if it a return to pre-CCSVI state, or if MS is progressing, but I DO KNOW that treatment for CCSVI helps MS symptoms. Can't fake this video. And placebo? Sounds like a band I used to like, because I have been feeling the effects for a year and a half, at least. Don't know how someone can fake hearing loss on a measured nerve test, only to have some of it
I am sure I have already posted about this. If I have, I am totally claiming MS cognitive issues. If not, whew!
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| Me, doing the zombie pin-up modelling...help me do it again by clicking LIKE for video number 4 at Lady Luck Pin Ups |
A video you say? Yup. I made one. It has pin-up pictures, me stomping on the cane I used when I was really sick with Primary Progressive MS, and stomping on that bad boy with big black platform PVC boots. You can see me trying to boogie board in Venice Beach. You can watch me walk in heels, and not be able to walk without assistance. You can watch half of my face frozen, or watch me advocate at Queen's Park. It is one crazy, whirlwind, action-packed video but, would you expect anything else from me? Thought not.
If you click on like, on the page Lady Luck Pin Ups for VIDEO NUMBER 4 (oh goddess, I hate yelling, I am sorry, but there have been mix-ups, like friends liking the video on you-tube instead of on this facebook fan page link, for example) I will win a contest. I can be a pin-up for a day, and forget my troubles. My pain. Feel good about myself. And, impress my friends. Pretty sweet, huh?
But, truly, this contest has given me the opportunity to share with people what treatment for CCSVI can actually do. My response was amazing, and I know not every one's is the same. I also know that some ofmy symptoms are coming back, slowly, and I am not sure if it a return to pre-CCSVI state, or if MS is progressing, but I DO KNOW that treatment for CCSVI helps MS symptoms. Can't fake this video. And placebo? Sounds like a band I used to like, because I have been feeling the effects for a year and a half, at least. Don't know how someone can fake hearing loss on a measured nerve test, only to have some of it











